‘I miss music’: Celine Dion weeps as she demonstrates impact of Stiff Person Syndrome on her voice
Celine Dion’s new documentary offers fans a glimpse into her life behind the scenes following her devastating diagnosis with Stiff Person Syndrome, as she reveals how it affects her famous voice.
The “All By Myself” star, 56, disclosed that she had the rare neurological condition, which causes muscle stiffness and painful spasms, in December 2022.
InI Am: Celine Dion, which is out now on Prime Video, the Canadian singer reveals she first noticed symptoms of the condition 17 years ago, while having breakfast.
“Seventeen years ago I started to experience some voice spasming, this is the way it started,” she said in the film, directed by Oscar nominee Irene Taylor.
“I woke up one morning and I had my breakfast, and after having my breakfast, my voice started to go up.
“It freaked me out a little bit, because normally when you’re tired as a singer because you did a show the night before, your voice would go roughly half a key down or one note down.”
She continued: “I was scared, I didn’t know what to do. And today, [I’ve received] the diagnosis. SPS, which is Stiff Person Syndrome.
“It’s in the muscle, it’s in the tendons, it’s in the nerves. You can’t see anything, because it’s not seeable.”
Dion said it reached a point where she “couldn’t walk”, as she was losing her balance and in “a lot of pain”.
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